Become involved with Mental Health Advocacy. #ENDtheSTIGMA #MentalHealth

Hi Everybody,

As many of you know, May is Mental Health Awareness month. And many of my followers should know by now that I’m very passionate about mental health advocacy. You can read my other articles to find out why and how I’m involved.

Last year, in 2019, this campaign was a huge success with several supporters from friends, coworkers, and people across the states. This year, I’m hopeful it will be just as successful. In this article, you’ll be able to see just a few of the people who supported during last year’s campaign. And you’ll be able to get a visual of what it’s like to wear such a powerful message on a t-shirt.

Each and every single time I’ve worn my shirt out in public, I’ve always received a compliment and asked where they can get one, well now is everyone’s chance to get their own! You can order here! (Remember the design is slightly different from last year’s.)

This year in 2020, I’ve decided to launch another awareness campaign and you’ve got a few different options to choose from at reasonable prices. The sizes range from youths small to adult sized 4X. Here is the link which will take you directly to the custom ink campaign page. This campaign is set to run for just 4 weeks, so once it closes no more orders will be accepted.


So go ahead and order your gear today, and get it in time for May! But you can wear it any day and this is a great way to help spread our message to END THE STIGMA! It’s also a great way to help honor & show our support to those who are in this fight every single day!

Please feel free to share this post within your community of followers!

Thank you for your support & much love to ALL! -Erika

Walking with a purpose. #MentalHealthMatters #EndtheStigma

Hello ALL,

I’m walking again this year to help raise money for NAMI Walks Washington. As most of you know who read my articles, know that I’m passionate about mental health advocacy and fighting against stigma. Last year, I had a small goal of $100 to raise for this organization. This year, I registered early so I can increase my goal in hopes to raise $1,000. I’m going to include the link here which will take you directly to my sponsor page. If anyone here is interested in walking themselves, you can go to NAMI’s national website and find a local walk nearest you.

myself & Lovey (President of NAMI Pierce) at the NAMI WALKS 2019

THANK YOU FOR BEING SO KIND AND SUPPORTIVE OF MY BLOG! I APPRECIATE EVERY SINGLE ONE OF YOU!

-Erika B.

My journey with Mental Health & Special Needs advocacy. #MentalHealthAwareness

Hear me out…then if you agree please share it to support my journey with advocacy & my truths as I know them. #MentalHealthAwareness

I’ve learned along my journey with advocacy for Mental Health & Special needs, that my truth may not be yours but it’s my lived experiences that make me an expert in what I’ve encountered as a mom & caregiver. I’ve learned that I can no longer expect others who are either wilfully ignorant or misinformed or inexperienced, that ⬅”these” will likely NEVER get understanding or be able to accept the facts as I know them, which are: Mental Illness isn’t a demon that you cast out, nor is burning sage or other witchcraft going to help “fix” this. Mental illness is a medical condition and it is a brain disease, that impacts the ways a persons brain functions.

Individuals with developmental delays, down syndrome, special needs, autism, to name a few, are not cursed, and their family isn’t cursed. My own son has developmental delays and he is the most loving, kind-hearted boy, he loves Jesus! What he has isn’t contagious & he doesn’t deserve to be looked at like he himself is a disease just because he walks different and talks different. No one deserves to be mistreated. People are so quick to label and put stigma onto those living with mental health conditions and special needs conditions. They tend to think the family is cursed or in some cultures they will disown them. Mental illness is not evil. Mental illness is an unfortunate disease of the brain. I won’t expect anyone to understand this because it’s not their lived experience, they just watch tv or what media hypes up without complete and accurate education. In other words, unless you have experience what its like raising a child with a mental illness/condition or special needs than I no longer expect you to get it. Just as much as the flu hits you and you get very sick with symptoms, is similar to that of how someone can become sick with a mental health condition, it’s not something we want, it’s not anything we saw coming, but mental illness(es) are NOT contagious. They are NOT a spirit that transfers to someone else for all you deep spiritual people. They (mental illnesses) are hereditary and known to skip a generation but not always. They are treatable and they are medical conditions. Have you ever sat down and tried to talk to someone about something & their response lets you know within the first few words that this conversation is going no where. So you just stop. Let me just say this, unless you’re willing to learn & educate yourself, then don’t form an opinion based off what you heard or what you saw on a TV show or movie. Unless you live this day in & out, you can’t even begin to know what it’s like to feel isolated, scared, hopeless at times. Its especially hurtful when you can’t even turn to your own family because they just don’t get it. Let me just say this, you might know of someone who’s living with a condition, or you have a relative, or you work in a clinic or at a hospital so you think you can relate, well let me say this, it’s NOT the same & I believe anyone who’s walked a similar journey as me, will agree.

My other son, was diagnosed with bipolar disorder & he is also the most kind-hearted, comical, genuine, respectful young man. He has a heart for God & he is overcoming his battles, he is a full time college student, he is a college student-athlete. He’s truly a warrior. All Glory to God!

And let me also say to some in the church, Stop running people off because you’re uninformed and unequipped to handle someone who has any one of these health diagnoses, and you ignorantly take them to the altar and attempt to cast out a demon, cuz it ain’t going to work, and you wanna know why? Because their ain’t no demon to cast out. Pray for healing to take place instead, pray for doctors to find a cure, pray for medications to have no side effects, pray for restoration and clarity, Pray for them to have the strength to go through. That’s what you can do. Offer support & offer love, these communities of people already feel isolated and ridiculed. I said this because you have no idea just how many people I have met & sat down & listened to their stories about how the church hurt them & ran them off. As a believer In Jesus myself, we must do BETTER!

We need to educate beyond the common mental health conditions of depression & anxiety, and beyond the “acceptable” conditions like cancer, diabetes, dementia, autism, ect. Hopefully you get my point. I’m not dismissing these conditions at all, just desiring more public awareness for Mental health conditions such as BP, bpd, schizophrenia, PTSD, suicidal ideation, ect. Which are all attached to stigma! We must eradicate stigma! People are out here suffering in silence! Wearing masks so good they fool their loved ones because they don’t want anyone to know what’s going on inside. They won’t get help because of fear of stigma! They have no one to talk to because others won’t listen. Their feelings are dismissed by advice being given instead. They feel misunderstood because when the one person they hoped would offer support, didn’t. Their scared and scarred. This is why when someone takes their own life, everyone usually says they seemed happy and didn’t know anything was going on.

My thoughts on evil…Don’t get me twisted there are people who are evil, commit heinous crimes, do pure evil acts, and then we find out through media that they’ve been declared “legally insane” or “mentally ill” which makes every single person who has a mental health condition/illness viewed in a bad light. Which in my own opinion creates ongoing stigma because it’s not all the details, most times we just read, “school shooting and shooter has a history of mental illness”. Their behaviors are influenced by what they feed their thoughts not simply just because they have an illness. And there are always a whole bunch of other factors that play a huge part in someones health declining. Usually it’s because they either aren’t receiving treatment, or they haven’t found the right treatment yet, or medications arent being taken or medications need to be adjusted, ect.

What I don’t agree with is putting everyone in the same boat. Everyone’s journey is different. Even people with the same health diagnosis can live with completely different challenges & experiences. So my truth may not be yours. But this is mine!

My truth is my lived experience while raising children with various health challenges, and I’m not cursed and I did nothing wrong for those who think so. My family is blessed beyond measure. God has chosen to give us this journey, this purpose to serve on this platform. God is my waymaker. Jesus is my Savior. God is my sustainer. God is my EVERYTHING. Thank you Lord! #MyJourney #MyTruth #MentalHealthMatters #Unashamed #SpeakYourTruth #BeKind #EducateYourself #RespectTheJourney

Lastly, here are some resources that could help save a life or help you learn more.

Mentalhealthfirstaid.org
Nami.org
NIMH.nih.gov
Blurtitout.org
Bphope.com
https://suicidepreventionlifeline.org/
Understood.org
https://www.navos.org/


Crisis Textline 741741 text (Home) 24/7
Suicide Prevention Line 24/7
(800) 273-8255
Pierce County Crisis Line
(800) 576-7764
24 hour crisis line
(866) 427-4747
Teen Link (6pm-10pm)
(866) 833-6546

Thanks again for being here. This was a post I wrote on my personal social media & wanted to share it here.

“What’s wrong with him?” #specialneeds #mentalhealth

As a mom to my son, Erik. Down thru the years I have encountered some very nice people, but sadly I have also encountered some very nasty and ugly people. I have been asked by people of all ages from his peers to adults, “WHATS WRONG WITH HIM?” Mostly when he wasn’t talking yet and he was only able to make sounds and body movements for expressing excitement. Back then he used sign language mostly.

I have also witnessed others like my son being mistreated, overlooked, stared upon with disgust, and it really takes me to a place that others rarely see I can go. YES, I have a button so don’t push it. I can turn into the incredible Hulk when you mistreat my child.

So here’s a challenge for life to the ones who are uneducated, uninformed, maybe willfully ignorant, or possibly just a mean spirited person.

When it comes to a negative perspective about individuals with special healthcare challenges, RATHER THAN ASKING YOURSELF “WHATS WRONG WITH HIM/HER?” How about you take a moment to get to know the person so you can learn everything that is right about them? Just because a person is nonverbal doesn’t mean they aren’t able to comprehend how you treat them or what your saying. Just because a person talks loudly doesn’t mean that they are angry or needs to be restrained. Just because a person is wheelchair bound doesn’t mean they don’t still have other abilities, some that may blow you away. Just because a person may appear to be “limited” doesn’t mean they can’t or won’t be able to break the “limits” you think can’t be broken. Just because a person may look very different, act very different, respond differently, or express themselves differently, doesn’t give another person the right to mistreat them, shun them, or say nasty things about them. After all, we’re all different already, no one is the same. So next time your out and you run into someone who’s living with obvious special challenges, take a moment to smile at them, say hello, or greet them. Instead of staring, bickering, and acting like their contagious and going to infect you with something.

And to the people who are so perfect and like to stigmatize families that have children or loved ones with special challenges. I would just like to say this, WE DON’T HAVE DEMONS, WE ARE NOT CURSED, WE DIDN’T DO ANYTHING WRONG, AND WE ARE BEING PUNISHED BY GOD BECAUSE WE HAVE GIVEN BIRTH TO A CHILD WHO’S DEVELOPED CHALLENGES!!!!!!! I did everything that I know as right to take care of myself, my health and diet, and spiritual walk with God and yes my life still had to endure hardships, various trials and tribulations, go through GREAT suffering, but in spite of it ALL, all these have taught me, compassion, understanding, empathy, patience, faith, how to keep faith during hardships, and to have love for my enemies and ones who despitefully used me.

My son loves God and I believe he has a very special connection to our heavenly father that no one else on this earth has the same.

I’ll never forget when my son was so much younger and we were inside of Walgreens standing in line, and at that time he was probably 5 years old and really just began to talk and learned to say Hi to people and he absolutely loved to get a response and interaction from others. So he would say Hi more than just once and keep saying Hi until he got a reply back. So he said Hi to this lady standing in front of us because she made eye contact with us, and she just kept staring, but said nothing back, then I thought well maybe she doesn’t talk or she could be deaf or something, but NOPE, she heard him because he kept saying Hi, and she deliberately ignored him, and just stared at him like he had a disease, she finally turned and began talking to a person in line. So as Erik kept saying Hi, I turned to my son and said, You know what Erik, its okay if she doesn’t want to say Hi, some people are just rude and don’t realize just how special you are and who they are standing in line with. And he just got excited and at that time he would gesture his arms and make this whoofing sound to express his excitement.

You have to give people time to develop, grow and learn at their own pace sometimes. Sometimes its not always a ONE SIZE FITS ALL world for everyone.

And it’s not always a fair assessment to say a child or teen isn’t able to learn and fail them in your class, just because they are struggling. Have you considered that maybe just maybe it could be your teaching style that needs a different approach or a tweak? Sometimes people are good at doing their own job, but it doesn’t always mean they are good at teaching what they do. Sometimes people are good learners but not good teachers. I’ve witnessed this in college and when I worked an actual 9to5 and had to punch the clock.

I challenge you to make and take time to learn about others and get to know and understand the person you may have looked at “differently” & learn about their journey and maybe you can come to respect and accept who they are.

So it’s because of moments and memories like these that have made me continue to speak out and speak up on behalf of my own son and others who live the daily grind just like me and my family.

Thanks for listening. -EB

Artwork for therapy. #Epilepsy #Anxiety

Here are the latest pieces of my daughter’s art work. Welcome to SEENYART! She has been drawing since she was in elementary school, and she is turning 21 in October. Time has flown. Her art has become more skilled and developed. I’m very proud of all she has overcome and battled in her young life. Art and drawing is her outlet for relaxation and allows her creative juices to flow. These pieces were inspired by her first self portrait of herself as half her and half tiger. So now she has just completed, Lebron aka King James and a Lion. And Tiger Woods and a Tiger. I wish someone would discover her talents and hire her. She dreams of having her own art studio one day! And I believe she will sooner than later! SeenyArt will be a physical store and not just an etsy shop online. Beauty is in the eye of the beholder. And she takes requests and charges appropriately.

She loves to sketch, draw, paint, and creates with charcoal, prisma colored pencils, acrylic paints.  She has such a creative mind, photo graphic memory and she is talented.  But also her own worst critic.  I think these are amazing.  But she thinks their “just ok”.  The other 2 are for sale, but her self portrait is not.  If you are interested in purchasing, please contact me.  Only serious offers please.

Thanks for the support.

 

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My daughter

Lebron (King James)

Tiger woods

Me, mental illness, stigma and speaking out.

This is my experience as I know mental illness, stigma and speaking out. I have a very unique journey, from both sides of the world, one being the “special needs” community, and the other being the isolated world of “mental illness”. Because for some reason God chose to let my children live with a variety of challenges, whether you consider them, “invisible disabilities, high functioning, special needs, intellectual disabilities, mentally challenged, developmentally delayed, etc” the list goes on and on and I am so used to it, that those are just words now. I could care less. I use them myself because that’s how some can identify with what I’m explaining. I do however care when it comes to offensive derogatory words or stigma!

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As a caregiver & mom of children who are living with mental health challenges, and developmental delays and when my world became flipped upside down and torn to shreds in those intense “Never would have imagined this could happen to me” moments, I went thru various stages of emotions.

First, was the “why” phase. When I ask God why is this happening to my child? Second, was the “anger” phase. When I grew angry at the fact that life as I once knew It, became a stranger to me and there was nothing that could be done to change what was standing and existing right in front of me. Then came the “what, how, when, why” phase. This is where things seemed like it was going to remain stuck in turmoil and all the questions came into play. What if they never bounce back to their normal self? What if they will never be able to overcome this? What if I have lost the child I once knew before? What will their future look like? What if others find out what they’ve went through, will they be treated different? What if I lose friends myself? How did this happen? When did things change? Did I miss something? Why did it happen? Who do I turn to for help? Who can I talk to about such personal and scary stuff without being stigmatized? These were just some of my concerns and questions when my world flipped upside down the first time, during my son’s 8th grade year.

Now, nearly 6 years later. After having educated my own self about mental health and mental illnesses, and becoming involved with advocacy. My questions and concerns, and feelings have shifted. Now I ask. Why don’t people want to learn more about mental illnesses, and symptoms and how to identify a person in crisis? When will others realize that mental illnesses are brain disorders and they are caused by something medical, yet it’s mostly always labeled as “mental” so it’s dismissed that bipolar, schizophrenia are medicaly related? What if it was YOU, what if this happened to you, how would you want others to treat you? Why does the media continue to make every person living with mental illness look like a evil person? When are we going to see the people who are living successfully with mental illness? When are we going to see the commercials that someone with bipolar 1 disorder, overcame and graduated college? What would you do if your own brain had some thing similar to a heart attack? Why does there seem to be a separation between a person who has Autism, versus a person who has both Autism and Bipolar 1? Or has one but not the other? How would you feel if you were stigmatized because your child became diagnosed with Autism or Bipolar? And people said you must be cursed because your kids have issues? Why is it even okay that the media is allowed to portray false representations of mental illness?How can we eradicate stigma? What’s it going to take to eradicate stigma? Why isn’t it mandatory to be educated to the student body in high schools nationwide and staff? When will ER staff learn how to respond and what to do effectively in a mental health crisis? When will others learn that mental illness isn’t like a cold that you can catch? When will others see that NOT every individual who has a mental illness also has a drug addiction? When will people realize that NO one, NOT one person is exempt from becoming mentally ill? I say that to drive home a point, and some can disagree and maybe this is my angry phase once again, but when are people going to realize that just as much and as “normal” as my son was prior to his mental break, and as healthy as he ate and athletic as he is, and intelligent as he is, IT still wasn’t enough to keep bipolar from blowing our way and impacting his life. He was born on time, no complications, met every milestone on time or early in his development. Smart as a whip. So it doesn’t matter who you are, how healthy you eat, how active you are, what your age is, because for us, it was like one day this, and the following day literally EVERYTHING CHANGED! So learn about mental health, educate yourself. What happened to my family, can very well at any time happen to yours. Just as similar as a person who has a sudden cardiac arrest after sailing along thru life just fine, this is how I felt my son was suffering from a sudden misfire in his brain. And I truly hope and pray that one day we can find prevention, that mental illness can be detected early in children, instead of waiting until 18 to get a diagnosis. I hope that EEG’s or blood tests one day will be able to identify specifics of what looks like bipolar, schizophrenia, autism, borderline. I pray for everyone to become better informed. Especially those who are in uniforms and in a first responder role, so they can help people receive appropriate and effective treatment. I pray that mental health laws would enforced with better outcomes for both the individual and the caregiver. I pray that there would be a better more efficient way to identify someone in a mental health crisis, rather than ALWAYS having to treat them as if their on drugs or high off of them just because some symptoms are presently the same. Yet every second is crucial for a persons brain and the trauma it is going thru. I pray for better science and medical treatment.

When will the media begin showing the positive successes of individuals who live with mental illness as college graduates, high school honor students, successful engineers, game developers? Instead of always portraying the few that have had not so good outcomes. Yet the media always shows the person who commits a violent crime, and quick to mention their “mentally ill” but fails to often mention the other facts that they’ve stopped taking their medication and began self medicating.

Mental illnesses aren’t what causes evil. Evil meditations cause people to become evil, not the mental illness. I’m just saying from experience, not all people who have a mental illness are evil. Yes its possible for an evil person to have a mental illness, but again its not the mental illness that drives evil.

Mental illness often times gets the blame for heinous crimes. This is why stigma continues. Because we’re missing all the facts people! It seems like whenever a heinous crime is in the media, and Mental illness is mentioned, that alone overshadows all the remaining components to that person’s character and choices which influenced their decision to commit a heinous crime.

Mental illness is often depicted in movies as something “crazy”, “psycho”, or “dark”, “evil” because they take a character, write that he has a Mental illness and portray him as such horrific things. And this is what we support people. To those who like those horror flicks, or killer movies, which in my opinion feeds the stigma. You’ll NEVER get it, until or unless someone near and dear to you becomes sick with a mental illness. Then and only then will you view things in a different light, will you then become a little more sensitive to things you never were before. Anyways, I know what I know and so it doesn’t and will not matter what others opinions are to my own facts as I have lived them. There’s an old saying, just keep on living and after while…….

I guess I can’t expect everyone to get it! Especially those who haven’t lived a similat journey. And btw, no it’s not all peaches and cream. It’s a lot of sleepless nights, walking on eggshells, and alot of effort goes into continual caregiving and giving a care. But when you’ve walked a similar path to that of mine, then and only then will you get it. If you have questions, please contact me privately, don’t post a long comment.

Anyways….

The people I have met are very inspiring. They are some of the most kind-hearted, fragile, soft spoken, upbeat, funny, energetic, loving, compassionate individuals I have ever met.

I have had a very unique opportunity to meet individuals who are battling everyday with their mental health, yet because their mental illness is “invisible” to others, their mixed in and combined within the general pool of applicants, students, interns, positions, classes, etc. And to their credit, it is no ones business unless they choose to share that they battle depression, Anxiety, bipolar, etc. Yet these same individuals are just as successful, have graduated with honors, have went onto college, have become famous athletes, have became well known in society, but only few have chose to break their silence and share their journey of how they have not allowed their mental illness to cripple them. I wish anyone who has a respectable platform who has fought tooth and nail, would share to inspire others, educate the general public, and give hope to family members.

I am like Martin Luther King Jr, and I too have a dream. I dream that one day every person will be educated about mental illness and eradicate stigma that continues to exist due to ignorance and false representations. I dream that one day there will be a medical procedure to quickly and accurately identify people who are in mental health decline, rather than treating them as a drug addict or violent aggressor. I dream that we will find a cure for mental illness. I dream for a better future for individuals who live with bipolar, schizophrenia, ptsd, ADHD, autism, aspergers, borderline personality, and all others. I dream that I will live long too see change for the better. I dream that there would be equal compassion for every one who battles an illness, cancer, disease or life impacting, debilitating sickness. I dream that individuals who battle with mental illness will receive just as much compassion as individuals who battle cancer or autism or other life altering ailments.

If you’ve read this and are out of touch, uninformed or misinformed please take and make time to become in touch, informed and accurately educated about how to help someone in crisis. You could save a life!

To those who follow the articles I write, once again, thank you for being here. I know it’s been awhile. I appreciate your support and don’t take it lightly. And thank you to those who share my articles on their social platforms and outlets.

Blessings to all! – E. Brooks

My voice, my views, but my son’s journey. When the wind blew bipolar our way. (Repost)

Tonight, I will be sharing a small chapter of my oldest son’s journey of life in his teenage years and becoming diagnosed with bipolar disorder. This article is through my views and facts as I know them. It is my voice of experience as his mom, caregiver, and advocate.

It all began during the middle of his 8th grade year. He had come home from school one day, not speaking and with a grimaced facial expression. Anything I said, he wouldn’t respond to, I would just get that same expression. I could discern something was off, not exactly right, and very concerned. My husband was in denial, and thought he was just playing around, because our son often would joke around. However, I knew my son wasn’t playing around and this was nothing to joke about nor was it a joke itself. I like to think of it as “mothers intuition”. It wasn’t until he was attempting to make a sandwich and turn on the TV that it was obvious he was in need of medical attention. To see that he struggled to make that sandwich and watch him begin to twitch while trying to turn on the TV, that was enough for me. I can remember my husband laying down to take a nap as he too had just gotten home from work. As soon as I came out to the living area and saw my son struggling with the remote and his face twitching, I knew in that instant, he needed medical attention and there was something serious going on, but I just didn’t know what. We immediately took him to the hospital ER and he was admitted. They ran several medical tests, labs, and everything came back negative except one small concern. But it wasn’t able to explain why he wasn’t talking and why he was having all these involuntary movements with his upper extremities.

Long story short, he was discharged after sometime in the hospital as having an altered mental status. And sent home with a sedative to treat anxiety attacks, since this was also what he appeared to be experiencing. He was referred to follow up with their social worker/pediatric psychologist for outpatient services.

After his uncontrollable symptoms had ran their course. He finally stabilized and was home, all things appeared to return back to normal for himself as well as our daily living. And might I add, this entire “thing” had flipped our entire world’s upside down, inside out and scared the living crap out of us all. It was as though, here we were sailing through life just great and then this “thing” came in and interrupted our world as we once knew it before. During this time his mental health was out of his control and required him to finish his 8th grade at home. I arranged with the school district to provide a home school tutor and created a 504 plan with accommodations for his educational needs.

For those who have no idea what I’m explaining please follow this article for more descriptive details of my journey. Never did I think my family, my son, would experience anything like this. Prior to this happening our family was blind to mental illnesses and our family was once “untouched”, “uninformed”. Some of you have absolutely no clue how difficult it is to watch your child suddenly become nonverbal, incapacitated and suddenly crippled mentally and physically. It was heart breaking and I felt like my life was moving in slow motion as I was being suffocated. I felt helpless, and afraid for his quality of life.

All I had in these moments was my faith in God which served as my weapon and continual prayer as my strength. His health had been severely impacted during this time, and it was scary because of the unknown future. He needed assistance to feed himself, tie his shoes, and walk at times. And I’m talking about a child who was born healthy, normal and on time. He was advanced in some areas of his growth and development as a toddler. He had always been highly active, involved in sports, and very independent. All the things he enjoyed before had all become things that he no longer could enjoy at times. He would still partake in doing them, but just couldn’t enjoy them as he once had. It was as though the wind blew and everything changed in the blink of an eye.

To be continued…

1 year Anniversary of Not Forgotten Ministries. #SpecialNeeds #families #church

Today, marked the 1 year anniversary of the special needs church ministry that my husband began in May of 2018. I follow his lead as he is operating in his purpose. The name of the ministry is called Not Forgotten Ministries. Such a fitting name for the ministry, because we want other families who have special needs loved ones or individuals living with disabilities or other mental or physical healthcare challenges to know they are not forgotten by God.

Church Info

We had 3 new visitors along with their family or caregiver today. It truly did my heart some good today to see the people participate in prayer, scripture reading and singing along.

A mother sharing her story about her daughter’s health challenges & God’s goodness

Pics from Not Forgotten Ministries

Our service isn’t your typical church service either. It is geared specifically for special needs families. The entire family. Not to separate the individual with special needs from their family but rather include the whole family in one service. We always offer to involve everyone with prayer, scripture reading, and a brief time for sharing their story. Followed by the word of God, more prayer and benediction, but at times we go off script to accommodate the needs of God’s people.

The girls playing with balloons in the kitchen during refreshments

It’s always lovely to hear others share their stories about the journey with their special loved one and all they have overcome or are still handling today. Especially the other mom who shared today, about how happy she was at the service, mentioning that she had been to a different church that was supposed to be for special needs families, but they separated her from her daughter, while she was able to attend service with the congregation, they took her daughter into a private room with others to watch the service on a monitor and she said she didn’t like how that made her feel. So it was really nice to hear that she felt welcomed and comfortable.

As a mom, caregiver myself, I know first-hand the daily battles, struggles, victories, achievements and strength it takes to do it every single day. It’s not always peaches and cream and its not always smooth sailing, but I will admit, it is ALWAYS worth my time, my love, my support and my efforts to help my children and others within our community.

Me holding sis Shana’s newborn baby girl, Novalee. Such a precious baby. She was born premature, but God has blessed her with good health.

I am sharing these short video clips to show the glory of Gods special people. I was told by one caregiver that today was her very first time hearing her client pray and that it touched her heart. These families come from all kinds of different walks of life, Autism, ODDS, Epilepsy, Dementia, Developmental delays, mental health challenges but we all come together here in one place, unified as one body in Christ. We know our loved ones diagnosis but it’s like white noise to us. We only speak, write about, refer to it because it’s how others can identify with us at times.

I truly hope to possibly inspire others by sharing this. And maybe if you happen to be a minister or pastor of a church, you too will become inspired to begin a similar ministry in your town. There are many families just like mine, just like these, that would love an opportunity to come together at church and feel welcomed, accepted and understood. Again, this is not your typical quiet service. We cater to the needs of the people and their families as we realize the sensory issues and the other need to express themselves openly. We are all Gods people. We are all loved. We are all unique and wonderfully made. Created by God in his image and his likeness.

So to that other parent, caregiver or individual who’s reading this and living with health care challenges, don’t ever let someone shame you or make you feel less than worthy, just because your blessed to be who you are, or the person your caring for. Don’t allow others to stigmatize you. Hold your head high, walk in confidence and be proud of the life you have! Share your story to inspire others.  Tell your story to educate others.

I hope I was able to encourage someone this evening!

Thanks for being here again.

Operating in my purpose! While helping others. #Journey #Advocacy #MentalHealth

Hi everyone!

I’m super excited to announce my latest achievement in completing NAMI’s family-to-family support program! This was a 12 week course. But we managed to finish in 11!

Next up, I am registered to become trained on facilitating their Ending the Silence program! Which is exactly what I am passionate about. This program is geared toward teens and youth. It is designed to educate and bring awareness about mental illness and mental health. I’m so excited to become official in the coming months. I’m passionate about this program because it hits home for my family and the experiences we had as my son battled his illness while in middle school, high school alone and isolated. We were his only trusted support system. Outside of our home it was kept under wraps because of the shame, stigma, and fear. So I am using my journey to give insight to others.

It is all strictly volunteer based. So if others are looking to become involved you can go to nami.org and sign up to become a member or apply to become a facilitator with your local affiliate. NAMI has many affiliates in various states across the nation.

I challenge you to do your part to help create change and end the stigma!

Thanks for the continued support!

Living with purpose. #AbleNotTheLabel

See the able, NOT the label!

This is my son, His name is Erik. He was just a baby here, he is now nearly 17 and able!

My son far left, with his teammates.

Yes he has developmental delays but he is living his life just as anyone else would. Able and capable to try new things everyday. He has overcome many obstacles.

My son at his dance class

My son at cooking class, washing dishes.

My son working out with my husband, his dad.

For those other parents who might feel hopeless. Don’t give up on hope. It can get better with time, patience, prayer, hope, and support. And to think 17 years ago, he died twice, was on life support, suffered seizures, and doctors didnt give him much chance of survival! Well we proved them wrong! And he isn’t a vegetable either, like they said he would be. We were told he would probably never talk, walk, or be able to eat normally. To God be the glory!

Keep hope, stand on your faith, and stay encouraged, even when the clouds are dark and the news is bad. The outcome is better than where it all starts.

Live with purpose.

Thank you for being here.