Tonight, I will be sharing a small chapter of my oldest son’s journey of life in his teenage years and becoming diagnosed with bipolar disorder. This article is through my views and facts as I know them. It is my voice of experience as his mom, caregiver, and advocate.
It all began during the middle of his 8th grade year. He had come home from school one day, not speaking and with a grimaced facial expression. Anything I said, he wouldn’t respond to, I would just get that same expression. I could discern something was off, not exactly right, and very concerned. My husband was in denial, and thought he was just playing around, because our son often would joke around. However, I knew my son wasn’t playing around and this was nothing to joke about nor was it a joke itself. I like to think of it as “mothers intuition”. It wasn’t until he was attempting to make a sandwich and turn on the TV that it was obvious he was in need of medical attention. To see that he struggled to make that sandwich and watch him begin to twitch while trying to turn on the TV, that was enough for me. I can remember my husband laying down to take a nap as he too had just gotten home from work. As soon as I came out to the living area and saw my son struggling with the remote and his face twitching, I knew in that instant, he needed medical attention and there was something serious going on, but I just didn’t know what. We immediately took him to the hospital ER and he was admitted. They ran several medical tests, labs, and everything came back negative except one small concern. But it wasn’t able to explain why he wasn’t talking and why he was having all these involuntary movements with his upper extremities.
Long story short, he was discharged after sometime in the hospital as having an altered mental status. And sent home with a sedative to treat anxiety attacks, since this was also what he appeared to be experiencing. He was referred to follow up with their social worker/pediatric psychologist for outpatient services.
After his uncontrollable symptoms had ran their course. He finally stabilized and was home, all things appeared to return back to normal for himself as well as our daily living. And might I add, this entire “thing” had flipped our entire world’s upside down, inside out and scared the living crap out of us all. It was as though, here we were sailing through life just great and then this “thing” came in and interrupted our world as we once knew it before. During this time his mental health was out of his control and required him to finish his 8th grade at home. I arranged with the school district to provide a home school tutor and created a 504 plan with accommodations for his educational needs.
For those who have no idea what I’m explaining please follow this article for more descriptive details of my journey. Never did I think my family, my son, would experience anything like this. Prior to this happening our family was blind to mental illnesses and our family was once “untouched”, “uninformed”. Some of you have absolutely no clue how difficult it is to watch your child suddenly become nonverbal, incapacitated and suddenly crippled mentally and physically. It was heart breaking and I felt like my life was moving in slow motion as I was being suffocated. I felt helpless, and afraid for his quality of life.
All I had in these moments was my faith in God which served as my weapon and continual prayer as my strength. His health had been severely impacted during this time, and it was scary because of the unknown future. He needed assistance to feed himself, tie his shoes, and walk at times. And I’m talking about a child who was born healthy, normal and on time. He was advanced in some areas of his growth and development as a toddler. He had always been highly active, involved in sports, and very independent. All the things he enjoyed before had all become things that he no longer could enjoy at times. He would still partake in doing them, but just couldn’t enjoy them as he once had. It was as though the wind blew and everything changed in the blink of an eye.
To be continued…